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Living with Dementia: Lay Definitions of Alzheimer's Disease among African American Caregivers and Sufferers

Identifieur interne : 000845 ( Main/Exploration ); précédent : 000844; suivant : 000846

Living with Dementia: Lay Definitions of Alzheimer's Disease among African American Caregivers and Sufferers

Auteurs : Linda Liska Belgrave ; G. Janice Allen Elsey ; Kenneth J. Smith ; Maritza C. Flores

Source :

RBID : ISTEX:6E0CF2211CB48CB1B07DA1ABAB8E8EE0696FBB3C

Abstract

While the medical world aggressively pursues scientific knowledge about Alzheimer's disease, sufferers and caregivers live with this ailment, not as patients, but as people going about their lives, needing and providing care. This article reports explanations of Alzheimer's from the perspectives of African American family caregivers and sufferers. Data were collected from thirty‐six families using participant observation and focus group interviews. Although caregivers sought and used medical expertise, their explanations of Alzheimer's were not only nonmedical, but not necessarily explanations of illness per se. Alzheimer's was presented instead as a way of being, predominantly characterized by views of the sufferer as childlike and by issues of continuity/discontinuity, though some saw Alzheimer's as part of a larger picture.

Url:
DOI: 10.1525/si.2004.27.2.199


Affiliations:


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